£100 Compensation
If all sessions attended
To make sure our study addresses the real needs and priorities of those it’s designed to help, we’re forming a Patient and Public Involvement and Engagement (PPIE). Your insights will help us refine our research question, improve our participant materials, optimise our procedures, and ensure our findings are meaningful to patients and families.
The SYNC-ADHD PPIE Group
Why is Participation Important?
Lived Experience Matters
You know best what challenges and priorities young adults with ADHD face - your insights will guide our study design and focus.
Improve Clarity and Feasibility
Your feedback will help us make our materials clearer and more accessible, and identify any practical or emotional barriers to participation.
Shape communication
You will help us decide how best to share study findings with the ADHD community in a meaningful and respectful way.
Individuals with ADHD
Family Members of Individuals with ADHD
Caregivers of Individuals with ADHD
ADHD Charity Workers
Who Can Join?
What Does Participation Involve?
We plan to have four online sessions via Zoom over the course of the study
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Each meeting will be ~60 minutes, plus ~30 minutes reading materials beforehand
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Group size: 6 - 8 public contributors, alongside the research team and a PPIE coordinator
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Accessibility: If timing or online format poses a barrier, we’ll find alternative ways (e.g. one-to-one calls, written feedback)
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Confidentiality: With your consent we’ll record sessions for accurate notetaking; recordings will be anonymised and deleted after transcription
Introduce study aims, rTMS procedures, and PPIE role
Zoom Session 1
Zoom Session 2
Refine research question, review information sheet, consent form, and protocol feasibility
Zoom Session 3
Discuss early participant experiences; advise on retention
strategies
Discuss dissemination materials; reflect on PPIE processes and lessons learned
Zoom Session 4